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Race Against Spinal*muscular*Atrophy
| A.J. Factor says:
10/28/2008 8:11 AM |
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My 7 year old daughter, Sierra Journey Factor has Spinal Muscular Atrophy (known as S.M.A.) Sierra has been the poster child for Make a Wish, and is currently a poster child for the Children’s Miracle Network on 10,000 Thank you cards. My loving daughter is the most positive person I know. She has done photo shoots for "Give Kids the World", and even worked with Barney at Universal Studios! She is always looking forward to what is coming next! Adding to Sierra's already lengthy list of hardships, she once again spent her birthday, January 3rd 2008, in Arnold Palmer hospital. As you can imagine, this was a tremendous disappointment to us all. It has become routine for her to spend one to two months out of each year in the hospital. In spite of these hurdles, she remains a very cheerful person, and takes pride in making sure that being in the hospital during Christmas is the best it can be for the other children. She said, "It was no fun to be here on my birthday, but imagine how bad would it stink to be in here on Christmas!" This is when Sierra really decided she had to start a project of her own. She has two donated storage units that are currently filling up with toys for all the kids at Arnold Palmer Hospital and will be delivered there Christmas morning 2008. She recently had the opportunity to flip the coin at an Orlando Predators game and was so excited about the cheer she got. We want a chance to be heard so we can help families who are not dealing well with having a child or loved one with this disease. So, our family started a race team where I, her father, drive to spread the word and educate about S.M.A. with the hopes of utilizing a public platform, becoming a national voice for all to hear. With everything my daughter faces she gives me inspiration to keep my own dreams alive, which is primarily to educate others through doing something I love, racing. After the family has spent nearly all of our savings to educate people we have never got our word much past central Florida. This disease can be prevented with family planning and genetic counseling and there are lots of people out there that are unaware of this. Now is truly the time when we all need to reach our deepest, for without the assistance of sponsors, we will eventually run out of options. At SMA Motorsports we truly look forward to working with any potential sponsors, small and large alike, for certainly together, this is a race we can, and will, win! |
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